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  April 28, 2016 Child Ousted from School for Genetic Marker A California couple is suing a school district for viola...

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April 28, 2016

Child Ousted from School for Genetic Marker A California couple is suing a school district for violation of their sonʼs privacy rights. A teacher divulged that the 11-year old student has a genetic marker for Cystic Fibrosis. He doesnʼt have the disease, but he was ousted from the school after the parents of two other children with cystic fibrosis were told about his genetic marker without his parentʼs consent. But as a carrier, he poses no risk at all. The U.S. Departments of Education and Justice have submitted an amicus brief in support of the parents and against the school. One physician says itʼs unfortunate the child got labeled with cystic fibrosis. Think of what will happen as newborn screening expands to identify more and more genetic markers in children at birth. “Palo Alto DNA-privacy case could have wide implications,” Sue Dremann, Palo Alto Online, January 26, 2016. “Feds side with family in DNA lawsuit against Palo Alto district,” Elena Kadvany, Palo Alto Online, February 8, 2016.  

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