CCHF REPORT 2013: Patient Privacy and Public Trust: How Health Surveillance Systems Are Undermining Both
Hawaii
Birth Defects Surveillance System State HI
Statute/ Rule STATUTE: H.R.S.Cha pters 321 and 324 NO RULE FOUND
Language Specific to Surveillance System [§321-422] Birth defects program. The department of health shall establish the statewide birth defects program to: (1) Collect surveillance information on birth defects and other adverse reproductive outcomes; ...
Data Sharing
Research Authority [PART V.] [§324-42] Information collection. (a) Health care BIRTH facilities and health care DEFECTS providers shall make STUDIES available to the [birth [§324-41] defects program] Definitions. "Registry" information contained in means a health care records that collection of pertain to birth defects or [§324-42] (c) This part shall not other adverse reproductive data apply if the parent, guardian, or other outcomes. organized so person having custody or control of the (b) Any person or that the child objects on the grounds that the public or private health care information collection of the information conflicts facility may provide can be with their religious beliefs. The information or other data or processed and written objection shall be made a part relevant material relating to made of the child's medical record. individuals with birth available for defects or adverse research. reproductive outcomes to the [birth defects program] [§324-43] for inclusion in the birth Use of defects registry…. collected information. (d) No liability of any (a) The kind or character for
Copyright © Citizens’ Council for Health Freedom June 2013 Updated August 2012. All state statutes and department rules originally accessed online July/Aug 2008. Statute/Rule data not inclusive. For comprehensive or updated language, access complete statute and rules online, at local library or through the state legislature.
Consent Required? NO
Dissent Allowed? YES
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CCHF REPORT 2013: Patient Privacy and Public Trust: How Health Surveillance Systems Are Undermining Both damages or other relief shall arise or be enforced against any person or organization by reason of having provided information or material to the [birth defects program].
Copyright © Citizens’ Council for Health Freedom June 2013 Updated August 2012. All state statutes and department rules originally accessed online July/Aug 2008. Statute/Rule data not inclusive. For comprehensive or updated language, access complete statute and rules online, at local library or through the state legislature.
information collected under this part shall be used by the department of health or researchers only for the purpose of advancing medical and public health research, medical education, or education of the public in the interest of reducing morbidity or mortality, and only as approved by an institutional review board.
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